Vice President, Technology

MDA Overview

At MDA, we believe our biggest asset is our combination of different backgrounds, cultures, and disciplines united to form one high-performing team. By bringing together people from different backgrounds, perspectives, and generations, we ensure that we all have access to the opportunities, relationships, and resources necessary to learn, grow and thrive. What we do starts with our people and the neuromuscular disease community we serve. As America’s largest voluntary health organization covering research, healthcare, and advocacy for people with neuromuscular diseases, MDA is leading the way in improving the quality of life for those living with muscular dystrophy, ALS, spinal muscular atrophy, and dozens of related disorders – many first discovered and diagnosed by MDA supported scientists and clinicians.

Position Overview

The Vice President of Technology leads the evolution of MDA’s technology and data capabilities to better support its mission, scale its programs, and improve how work gets done across the organization.

MDA operates across a broad set of activities, including fundraising, research funding, care support, community engagement and advocacy. Each of these areas depends on strong systems, reliable data, and effective coordination across teams. This role is responsible for strengthening and connecting these capabilities so that the organization can operate with greater clarity, speed, and impact.

The Vice President serves as a close partner to business leaders, working across fundraising, finance, research, and patient services to understand priorities, improve workflows, and ensure that technology supports real operational needs. The role focuses on enabling teams to work more effectively by improving system usability, increasing data visibility, and reducing reliance on manual processes.

This role also requires a strong technical foundation, including a working understanding of enterprise application architecture, system integrations, and data flows across platforms. The Vice President must be able to engage deeply with systems design decisions, guide architectural tradeoffs, and ensure that technology choices support long-term scalability and maintainability. This role partners with leadership to leverage technology for innovation and strategic impact and stays versed in emerging trends to drive organizational effectiveness and mission delivery. It is a hands-on leadership role that combines strategy, execution, and collaboration.

This position reports to the Chief Operating Officer.

Location

This is currently a remote position.

Salary

This position's salary range is $170,000 - $180,000. Final offer amounts and levels are determined by multiple factors, including your experience, and may vary from the amounts listed above.

Responsibilities

• Improve and connect core systems, including CRM, financial platforms, research systems, and operational tools
• Translate business processes into scalable, well-integrated technology solutions
• Define and execute a technology roadmap focused on reliability, usability, and long-term scalability
• Establish and strengthen data capabilities to improve reporting, transparency, and decision-making
• Lead delivery of technology initiatives with clear priorities, timelines, and outcomes
• Ensure infrastructure and cybersecurity practices support a secure and reliable environment
• Ensure Salesforce is effectively configured, governed, and integrated to support fundraising, donor management, and reporting needs
• Manage vendor relationships and technology investments with a focus on value and performance
• Build and lead a technology team that is responsive, accountable, and aligned with organizational needs
• Develop and oversee IT governance practices, including standards, policies, and controls to ensure security, compliance, and effective use of technology resources
• Partner with leadership to develop and manage the technology budget, including forecasting, prioritization, and cost optimization strategies
• Support organizational compliance with applicable regulatory, legal, and data privacy requirements

Required Qualifications

• Bachelor’s degree in a relevant field
• 12+ years of experience in technology leadership roles
• Proven experience building and leading a high-performing, full-spectrum IT team spanning applications, infrastructure, data, security, and support services
• Strong understanding of enterprise application architecture, system integrations, and data models
• Experience managing enterprise platforms, including CRM systems such as Salesforce
• Experience with IT governance and budgeting
• Experience working directly with business leaders on cross-functional initiatives

Preferred Qualifications

• Experience in nonprofit, healthcare, or research environments
• Experience with Salesforce in fundraising or donor management contexts
• Experience with cloud-based systems and data platforms

MDA is an Equal Opportunity/Affirmative Action employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, national origin, disability, or protected veteran status.